Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
This Boy’s Bold Move with $13 Catapults His Family to a $2 Million Home
A young boy asked his mom for the last $13 she had saved for food so he could start a business. A few months later, he took her back to their tiny, old trailer and handed her the keys to their new $2 million home.
Annie Byrne, a mother from Atlanta, believed in teaching her son, Simon, the value of hard work and determination. She knew this would help him grow into a responsible person.
“Who cares if my son and I live in a rusty old trailer now? One day, he will take me to a palace and make me its queen!” Annie, a widow who worked as a janitor and struggled to get by, often dreamed of a better life.
One day, a mother’s prayers were answered in the most unbelievable way when her son handed her the keys to a $2 million house. But she didn’t know what sacrifices he made to make her dream come true.
“Mom, when will we live in a nice house?” 13-year-old Simon asked his mother. “It’s getting cold, and it’s cramped inside.”
Simon’s mom, Annie, didn’t know how to reply. She had very little savings, and her salary barely covered food and school costs for her son.
“Very soon… we’ll move very soon,” she told Simon, holding back tears. “Now close your eyes and go to sleep.”
Annie couldn’t sleep, though. She knew “soon” might never come. That night, she sat by Simon, heartbroken, thinking their struggles would never end.
The next morning, Simon’s friends asked him to play, but he didn’t go. He couldn’t be happy knowing how much his mom was struggling. While walking alone, Simon saw a boy earning money at a lemonade stand.
“Wow!” Simon thought. He wanted to start a small business, but he had almost no money. He left disappointed, but then an idea hit him. He ran home, excited.
“Mom, can I have some money?” he asked. Annie was hesitant.
“Son, I only have $13 left. That’s for food until I get paid next week,” she said.
But Simon was determined. “Mom, please trust me. Just give me the $13. I promise you won’t regret it.”
Reluctantly, Annie gave him the money, curious about what he’d do with it.
Later, Simon returned with several packets in his hands. Annie asked what they were, but he didn’t answer and grabbed a shovel. She watched in disbelief as he dug up the yard around their trailer, planting seeds from the packets.
“What are you doing?” she asked.
Simon smiled and said, “Mom, if we plant today, we’ll harvest tomorrow!”
At first, Annie didn’t understand. But over the next few weeks, Simon worked hard, watering and caring for the garden. Soon, the yard was filled with fresh herbs and plants.
Annie thought they’d use the produce for themselves, but Simon surprised her.
“Mom, we can’t eat this,” he said. “I’m selling it at a little stall I’m setting up. We’ll use the extra for ourselves.”
Simon’s fresh produce became popular. People loved his natural, chemical-free vegetables, and soon, everything he sold was gone quickly. As his business grew, Simon realized he needed more space to grow more crops. He expanded the garden and started growing fruits and flowers too.
As the money rolled in, Simon and Annie moved into a rented house. Annie even quit her janitor job to help Simon in the garden. Their stall grew, and soon the whole town knew about them.
But their success attracted the jealousy of a wealthy farmer named Alex, who couldn’t believe a young boy was doing so well. Curious, Alex visited Simon’s garden one day.
“How do you grow such healthy produce without chemicals?” Alex asked.
Simon replied, “People should eat food, not poison. We use natural methods to keep the plants safe.”
Impressed, Alex realized he had misjudged Simon. Instead of competing with him, Alex asked Simon to partner with him. Simon ran to ask his mother if he should accept the offer.
After thinking it over, Annie agreed. Simon balanced school and working on Alex’s farm while still tending to his little garden.
Their business took off. They started selling produce not just locally but even to neighboring states. Two years later, Simon saved enough money to build a new house on the same spot their trailer once stood. With Alex’s help, the house was finally built.
When Simon handed his mother the keys to their new house, Annie cried tears of joy. Her dream had come true.
“Simon, you gave up your childhood to make me happy,” she said, hugging him. “I love you.”
Simon smiled. “I can still play and have fun, but I couldn’t watch you struggle. I’ll always be your little boy!”
Though Simon was now successful, he never forgot the small garden that started it all. He kept growing the crops but never sold them again.
“We should enjoy the fruits of our hard work, Mom,” he said, laughing. “We’re going to eat this ourselves!”
Simon’s business continued to grow, and there were rumors
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