Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
9 Differences Between Men and Women That Have an Unexpected Explanation
Today, we would like to talk about the differences between men and women. You might say that you’ve known about these differences for your entire life, but it’s not that simple. We are sure that we’ll be able to highlight a few facts you’ve never heard of before. And in the bonus section, you’ll find out where the fashion for high heels came from.
The length of fingers
Let’s conduct a short experiment. Place your hand on a flat surface and compare the length of your index and ring fingers. In general, in women, the index finger is longer. In men, the ring finger is longer. How can this be explained?
According to scientists, the length of these fingers depends on the level of male and female hormones that affect the fetus in the womb. So, the reason why the ring finger is longer than the index finger in men is testosterone.
The skin on the heels
Scientists have found out that women’s skin is more hydrated in the décolleté area and on the hands. Only the skin on their heels is dryer than that of men. So, in equal conditions, men’s heels will be smoother.
Breast
You might think, “Why would a man need nipples?” It might sound strange but every person was initially female. When an embryo begins to develop in the womb, the male Y chromosome doesn’t immediately start working.
During the first 5-6 weeks, development occurs only under the influence of the X chromosome, so the nipples have enough time to form. If the embryo is male, the Y chromosome “turns on” after this period of time, and a boy is formed.
Men can even produce milk. Lactation is activated under special conditions, for example, it may appear during treatment with the hormone prolactin.
Vision
Women are better at seeing colors, but men are good at tracking fast-moving objects. This is probably linked to our hunter-gatherer past when men were hunters and women were gatherers.
For example, an orange may appear redder to a man than to a woman. The grass is almost always greener for women because green objects appear more yellow to men.
Gaining muscle mass
Many women have to go to the gym regularly to have a toned body, while a man can just lift a barbell a couple of times to get a 6 pack. So, what is the “ingredient” responsible for muscle development? If you guessed testosterone, you’re right.
In women, it is also produced, but in much smaller quantities. So, it is easier and faster for men to gain muscle mass.
Hair loss
Going bald after the age of 50 is typical for around half of men (and for a quarter of women too). The reason for this is a widespread hereditary disease, androgenetic alopecia, which is also called “male pattern baldness.” Due to this condition, hair follicles shrink, and hair becomes thinner and shorter, and eventually disappears.
Follicle shrinkage can be caused by sensitivity to dihydrotestosterone, a by-product of testosterone. This means that the more muscle-building hormone a man has, the more likely it is that he will become bald.
Adam’s apple
Both men and women have an Adam’s apple, but it’s more prominent in men. Why? The Adam’s apple is the cartilage that protects our vocal cords. It is formed during puberty. Since adult men have larger vocal cords, their Adam’s apple is also more prominent.
By the way, the larger the Adam’s apple, the deeper the voice. There is a theory that our ancestors needed a low voice in order to scare away predators.
Brain size
A man’s brain is larger than that of a woman, but this doesn’t mean that men are intellectually superior to women. Also, some parts of the brain in both sexes are different in size and work differently. For example, the hippocampus, which is involved in learning and creating memories, is larger in women. And the amygdala, which is associated with experiencing emotions and remembering them, is larger in men.
Scientists conducted an experiment: they showed the subjects a video so that they could recall some personal experiences. It turned out that in men, activity was observed only in the right amygdala, and in women, only in the left one.
Beard
At first glance, it might seem that a beard doesn’t provide any benefits. So, why does it grow? There is a theory that the jawline looks more massive thanks to a beard, so its wearer looks stronger and more masculine. Perhaps, our female ancestors tended to choose men with a thick beard as their partners because they thought they would produce healthy offspring with them.
Bonus: Heels
Nowadays, high heels are one of the symbols of femininity, aren’t they? However, in the 17th century, Persian riders used to wear one-inch heels. And since owning horses was a symbol of wealth, heeled shoes also came to signify money and power. The Persians then brought their fashion to Europe.
The French king Louis XIV became a big fan of heels. He even issued a decree according to which only nobles were allowed to wear heels. The higher and redder the heel was, the more powerful the wearer was.
The Sun King only allowed those who he favored the most to wear red heels. But since the 18th century, heels have become a purely feminine attribute, although this didn’t stop rock stars like David Bowie and The Beatles from wearing them.
Which facts mentioned in this article were new to you? Tell us in the comments below.
Preview photo credit 16704029 / Pixabay
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