Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I Gave Birth to a Child After 20 Years of Waiting & Treatment — When My Husband Saw Him, He Said, ‘Are You Sure This One Is Mine?’
The day my son was born should have been the happiest of my life. Instead, it was the day my entire world began to fall apart. When my husband finally showed up at the hospital, what he said left me questioning everything.
I’ve been married to my husband, Ethan, for 21 years. For most of that time, we’ve battled infertility. I’ve shed more tears than I ever thought possible—tears of hope, disappointment, and despair.
Stressed out woman | Source: Midjourney
When we first started trying, Ethan seemed supportive enough, attending doctor’s appointments and holding my hand as we navigated the maze of treatments. But as the years dragged on, something shifted. He started behaving… differently.
I brushed it off for the longest time, convincing myself it was just the strain of our situation. After all, infertility takes its toll on a marriage. But his late nights at work and secret calls became more frequent.
I’d hear him murmur things like, “I’ll call you later,” before quickly hanging up when I walked in.
Man seated in his office at night | Source: Midjourney
It was unsettling, but I chose not to focus on it. I was so consumed by the desperate desire for a child that I couldn’t allow myself to spiral into paranoia.
By the time I turned 40, I had nearly given up hope. But something in me—call it stubbornness or sheer desperation—refused to let go completely. I decided to try one last time. Ethan seemed indifferent, mumbling something about “whatever makes you happy” when I told him about my decision. That hurt more than I cared to admit.
And then, against all odds, it happened. I got pregnant.
A person holding a positive pregnancy test | Source: Pexels
“Ethan,” I’d whispered, holding the positive pregnancy test in shaky hands. “We did it. I’m pregnant.”
“That’s… great. That’s really great,” he said, but his tone was off. Forced. I ignored it, focusing on my own joy.
Nine months later, I gave birth to a beautiful baby boy. Ethan refused to be in the delivery room
“I’ll just pass out,” he’d said when I begged him to stay. “They’ll end up taking care of me instead of you.”
So, I went through it alone. And when he finally walked into the hospital room two hours later, his first words shattered me.
“Are you sure this one’s mine?” he said, his voice cold and flat.
Newborn baby covered in blue blanket | Source: Pexels
I felt like I’d been slapped. “What? Ethan, how can you even ask me that? Of course, he’s yours! We’ve been trying for this baby for years!“
His jaw tightened, and he reached into his jacket pocket, pulling out something I couldn’t see. “I have proof,” he said.
My world tilted. What proof? What could he possibly mean?
He started telling me this wild story about how his mother had “proof” I’d been unfaithful—photos of a man supposedly waiting for me outside our house, and how she claimed no baby had been delivered from the room I gave birth in, but that someone had brought in a different baby to make it look like mine.
Man standing in a hospital room | Source: Pexels
I stared at him, dumbfounded. “This is insane. It’s all lies! You really believe her?”
“She wouldn’t lie to me,” he said, his tone cold. “She’s my mother.”
“And I’m your wife. The one who went through everything to have this baby. The one who almost died giving birth to him! And you’re standing here accusing me of…” I couldn’t even finish the sentence.
He turned on his heel, his expression unreadable. “I’ll be back when I’m ready to talk,” he said, walking out the door and leaving me sitting there, trembling with rage and hurt.
Woman holding her newborn baby | Source: Midjourney
The moment he left, I grabbed my phone and called my best friend, Lily. She picked up on the first ring.
“Claire? What’s wrong?”
I couldn’t hold back the tears. “He thinks I cheated on him. He said his mom has proof. Lily, it’s insane. I don’t know what to do.”
“Okay, slow down,” she said, her voice calm but firm. “Start from the beginning.”
By the time I finished explaining, Lily’s voice had taken on a hard edge. “Something’s not right, Claire. You need to watch him. He is not acting normal.”
Woman on phone | Source: Midjourney
“Watch him? How?”
“I’ll do it,” she said without hesitation. “If he’s up to something, I’ll find out.”
Hours later, she called back after tracking him. “Claire, he went to another woman’s house. I saw him go in.”
My heart stopped. “What?”
“Listen to me,” Lily said urgently. “This doesn’t add up. You need help—professional help. Hire someone who can dig into this.”
Emotional woman on phone | Source: Midjourney
A few days later, I contacted Lydia, a private investigator Lily had highly recommended. She listened intently, as I recounted every detail.
“This is messy,” she said finally, her sharp eyes meeting mine. “But I’ll get answers. Give me two days.”
Two days. All I could do now was wait.
When I brought Liam home from the hospital, Ethan wasn’t there. No text, no call—just a chilling, empty silence.
What kind of father doesn’t show up for his son?
Woman holding a newborn baby | Source: Midjourney
The waiting was unbearable. I checked my phone every five minutes, hoping for a word from Lydia, the private investigator. When the doorbell rang early the next morning, I almost jumped out of my skin.
Lydia’s face was serious, her lips pressed into a thin line. “We need to talk.”
I led her into the kitchen, settling Liam into his bassinet. Lydia’s eyes softened when she glanced at him.
She leaned forward, her voice calm but deliberate. “I spoke with Ethan’s sister.”
Women having a serious conversation | Source: Midjourney
“His sister?” My eyebrows knitted. “We don’t talk. She’s… well—”
“She’s not an addict as you think” Lydia interrupted. “She’s been sober for years, and she told me a lot—things that are going to change everything for you.”
“What kind of things?” I asked.
“Ethan married you for your money,” she said bluntly. “His entire family knew. They planned it from the beginning.”
Women having a serious conversation | Source: Midjourney
“What?” My voice cracked, my grip tightening on the edge of the table.
“For the past twenty years, he’s been siphoning money from your inheritance. Not just for himself, but to support another family—his other family. He has three children with another woman.”
“No… you’re wrong,” I shouted.
“I’m not,” Lydia said, sliding a folder toward me. “It’s all here—bank records, medical bills, and photos. And there’s more. It looks like Ethan might’ve been sabotaging your attempts to conceive.”
A person receiving printed documents | Source: Pexels
I froze, staring at her. “What… what do you mean?”
“Some of the clinics you went to—there’s evidence he tampered with things. He didn’t want you to get pregnant, Claire.”
My chest felt tight. I could barely breathe.
Lydia’s words hung in the air, suffocating me. I could barely think. “Sabotaging my treatments?” I whispered, my voice trembling. “Another family? How… how could he do this to me?”
Stressed out woman | Source: Midjourney
I glanced at Liam in his bassinet, his tiny hand curling and uncurling in sleep. The weight of twenty years crashed over me like a tidal wave. Memories I’d once cherished now felt tainted. The little gestures of love, the whispered promises of forever—it had all been a lie.
The sobs started quietly, but soon they came in waves, shaking me to my core. How could I have been so blind? So foolish? I’d spent years blaming myself—my body—for our struggles to conceive, while Ethan had been sabotaging me.
Stressed out woman | Source: Midjourney
I thought of every late-night appointment, every failed treatment, and every moment I’d spent crying in the dark while he faked concern.
“I trusted him,” I said aloud, my voice breaking. “I loved him, Lydia. I gave him everything.”
Lydia stood, placing a steadying hand on my arm. “And that’s why you have to fight back, Claire. He doesn’t deserve your tears. Think about Liam. He needs you strong.”
I looked at Liam, my tears slowing as anger replaced the grief. Lydia was right. My son needed me. I wiped my face, my resolve hardening with every breath.
Mother cradling her newborn baby | Source: Midjourney
“You’re right,” I said finally, my voice steadier now. “I’m not going to let him get away with this.”
I picked up my phone, staring at the screen for a long moment before dialing. “James,” I said when my lawyer answered. “We need to talk. It’s about Ethan.”
A few days later, I heard the familiar rumble of Ethan’s car pulling into the driveway. The divorce papers were laid out neatly on the kitchen table, ready for him.
I stayed in the living room, Liam nestled in his bassinet beside me, as I waited for him to walk in. The door opened, and Ethan stepped inside.
Mother holding her baby | Source: Midjourney
“Claire?” he called, his tone tentative, like he already knew he was walking into a trap.
“I’m here,” I said, keeping my voice steady.
I didn’t waste a second. “Why are you abandoning your son?” I asked, each word deliberate and sharp.
He blinked, startled. “What? I’m not abandoning anyone. Claire, I… I’m sorry, okay? I was confused and emotional. I said a lot of stupid things that I didn’t mean. None of it was true.”
“Really?” I tilted my head. “Then why didn’t you pick us up from the hospital? Where were you for three days? Why didn’t you answer my calls?”
Couple having a disagreement | Source: Midjourney
He hesitated, but then his expression smoothed into that familiar, disarming smile. “I had an urgent business trip,” he said, his voice oozing fake sincerity.
“Claire, I swear, I wasn’t ignoring you. I would never do that. I’m so sorry, sweetheart.”
“Interesting,” I said, leaning back slightly. “What are your three kids’ names?”
His entire face froze. The smile evaporated, replaced by a look of pure shock. For the first time, the mask slipped, and I saw the man underneath—the liar, the manipulator.
“I—” he started, but no words came out.
Couple having a disagreement | Source: Midjourney
“Save it,” I said, cutting him off with an icy glare. “I know everything, Ethan. When you leave today,” I said, standing and turning toward the stairs, “make sure to grab the divorce papers from the kitchen table. Thanks.”
I didn’t wait for his reply. I carried Liam upstairs, my heart racing.
A moment later, I heard the front door slam shut. When I came back down later, the papers were gone. It was finally over.
After a couple of few weeks, the settlement was finalized. Ethan left with a modest payout—a sum I considered a bargain to rid my life of his toxic presence. The house, cars, and businesses stayed with me, thanks to the mountain of evidence my legal team presented.
Woman in deep thoughts | Source: Midjourney
My lawyers were also building strong cases against Ethan and the fertility clinics that had conspired with him. “This will take time,” my attorney, James, warned me. “But I’m confident we’ll win.”
Time was something I was willing to invest in. For now, my focus was on Liam. He deserved a life free of lies, and deceit.
One evening, as I rocked Liam to sleep, I whispered softly to him, “I’ll make sure you never grow up doubting your worth, little one.”
Mother cradling her baby to sleep | Source: Midjourney
If you enjoyed this story, you won’t want to miss this one: I left my newborn with my husband for a work trip — When I got back, he was acting strange. His reason left me stunned.
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided as “is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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