Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Boy Gives up Dream Shoes to Buy Boots for Poor Classmate, Soon Truck Stops at His House to Reward Him — Story of the Day
12-year-old David was excited to buy new sneakers after saving up for months but decided to buy boots for his classmate whose shoes were tattered. Little did he know that his kindness would be rewarded in an unexpected way.
David always found himself a window seat on the school bus back home. As always, he opened the window wide and let the afternoon breeze brush across his face as he recollected the game he played that day, moment by moment.
“That was unbelievable, what you did on the field today!” one of his mates had said.
For illustration purposes only. | Source: Getty Images
“I think we’ve got a national-level player on our hands, guys. Get your autographs while you can!” another player teased David, patting his back almost a bit too hard.
That was the distant dream — playing for his country and creating history, like all his soccer heroes.
David could almost taste it; the sweet air of victory and pride when his team and he held the golden championship trophy and smiled for the photographs.
David would constantly rehearse what he would say for the cameras and the papers at the end of the match. How he rose from humble beginnings. And how he owed his mother everything he had become.
“Excuse me, may I sit here?”
David was so deep in his daydream that he didn’t realize one of his classmates had asked permission to sit next to him.
The boy sat down next to David, hugged his backpack, and started dreaming his own dream. ‘I want to become the best soccer player in the school. Just like David. I can’t believe I’m sitting next to him!’
For illustration purposes only. | Source: Getty Images
The boy was a true fan of David’s game and wouldn’t miss a chance to watch him play. In his mind, David was everything he wanted to be. He wanted to play like him, have tons of friends like him, and even wear those fancy soccer shoes David was wearing.
‘These old tattered shoes should do…for now,’ the boy thought, hiding his feet under the seat out of embarrassment.
Guillermo was always shy and found it challenging to make friends. One day, the boy finally found the courage to talk to his hero.
“Hi, David! I’m Guillermo. I’m your biggest fan!”
“Oh? Hi, Guillermo! Thank you.”
There was an awkward silence as David went back to daydreaming.
“I…really like your shoes!” Guillermo blurted the first thing that came to his mind.
“These? These are really old, and the soles have already started to come off. You should see the new shoes I’ll be getting…” David’s eyes lit up, thinking about the dreamy pair of sneakers he had been saving up for.
For illustration purposes only. | Source: Getty Images
“Tell me more about them!” Guillermo said, slowly tucking his feet under the seat. He didn’t want David to see how ugly and tattered his own shoes were.
“Well, they’re perfect! They’re neon orange, and they’ve got unbeatable grip…”
It had been seven months since David had been raising money to buy the pair of sneakers he wanted. This was the first time the 12-year-old wanted to buy something for himself. And he wanted to do it without burdening his mother. He knew how hard his mother worked, struggling to provide for him and his two younger twin sisters.
“Mom, you don’t need to contribute. Tracy and Katie have their birthdays coming up soon, and you need to save up to throw a tea party, remember?”
David saved up enough money. He did it with the help of a short paper route every morning and the savings from the lemonade stand he had put up the last vacation. Until one day, his piggy bank was full, and he finally had enough to bring his dream shoes home.
For illustration purposes only. | Source: Getty Images
On the bus ride home from school that day, he couldn’t stop talking about it with Guillermo.
“Guillermo! I did it! I’m going straight to the store after homework this evening and buying the best sneakers in town. In fact, I’ll come and pick you up, and you can accompany me to the shop. It’s going to be the best feeling ever!”
Guillermo felt genuine happiness for his idol. That’s when the bus suddenly jolted over a pothole, and one of Guillermo’s shoes fell off onto the bus floor.
David was taken aback at the sight of the worn-out, blackened shoe. It was a pair of thin, low-quality summer shoes that had seen too many seasons. There were holes in the sole, the canvas was coming apart, and there was no sign of a lace.
Guillermo let the other shoe fall, giving in to the feeling of shame.
David had tears in his eyes when he looked at his friend, hiding his face in his palms, sobbing quietly but uncontrollably. The two boys didn’t know what to say to each other for the rest of the ride.
For illustration purposes only. | Source: Getty Images
“Be ready by 5 o’clock!” David finally reminded Guillermo of the evening’s plan to visit the store. There was no way David was going to the store alone. Not after what he had seen.
“Ah, David! Here to pick up your new pair of soccer shoes? I’ve got them packed and ready right here.”
“Hold on, sir. Could you show me a pair of those in a smaller size?” David said, pointing at a pair of comfortable boots.
Always help the needy whenever you can.
The shop owner, Mr. Manning, was confused. “But the ones I packed are your exact size, Dave.”
“Not for me, for my friend here,” Dave replied.
Guillermo couldn’t believe what he had heard. He couldn’t possibly let David do that.
“No, David, I don’t need—”
For illustration purposes only. | Source: Getty Images
David squeezed Guillermo’s hand and blinked softly to quiet him. “I’ve got this, Guillermo. You’re always calling me your hero. Let me try and be one for you.”
Mr. Manning heard this exchange between the boys and felt a warmth of love and affection rise in his chest. He knew exactly what to do.
“Woah, this one looks great on you, friend. And it’s the absolute best we’ve got in this store.”
David was finally satisfied with the pair of boots he had bought for his friend. Guillermo’s shame had turned to overwhelm, gratitude, and pure joy over his unexpected gift.
As the boys left the store and cycled away, Mr. Manning signaled his staff. “Listen, there’s something we need to do right away…”
“David! There’s someone at the door for you! He arrived with an entire truck, actually.” David’s mother couldn’t make heads or tails of the strange visitor, either.
For illustration purposes only. | Source: Getty Images
David rushed to the door and found a familiar face. It was Mr. Manning, the shoe store owner. “I heard you talking to your friend at the store, Dave. I know what you did.”
David’s mother leaned in with a crease of suspicion sitting on her brow.
“I know how much you wanted those spiked sneakers, and I’ve seen you selling lemonade and delivering newspapers. And today, I saw you let all that desire go, just so you could help a friend who was in deeper need than you were.”
David lowered his head out of shyness, catching a glimpse of the proud look on his mother’s face from the corner of his eye.
“And I think this kind of kindness and friendship ought to be celebrated in this day and age. So come on! Get on the back of this truck and pick up as many pairs of shoes as you’d like. For you, your mother, and the twins… Don’t worry about the money; this is all on me.”
For illustration purposes only. | Source: Getty Images
David hesitated, looking to his mother for approval. As soon as she nodded, he dashed towards the truck with eyes shining in excitement.
“Hurry, we’ve still got to get to your friend’s house. There are free shoes for him and his family, too!”
What do we learn from this story?
Always help the needy whenever you can. Although David worked hard to buy new sneakers, he used the money to help Guillermo, who was wearing torn shoes.
An act of kindness can be infectious. The shoe store owner noticed David’s kindness. He was inspired by the boy’s actions and decided to help his and his friend’s family.
Share this story with your friends. It might brighten their day and inspire them.
If you enjoyed this story, you might like this one about a boy who received his favorite sneakers from the thrift shop as a gift on his birthday. He noticed an inscription on it and was shocked to learn about its previous owner.
This piece is inspired by stories from the everyday lives of our readers and written by a professional writer. Any resemblance to actual names or locations is purely coincidental. All images are for illustration purposes only. Share your story with us; maybe it will change someone’s life.
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