The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Found in a bedroom of the 100 yr old house i just moved into, what can it be for?
House built in 1916–on the other side of this wall is what used to be a “sewing room”, according to my landlord. the house has about eight bedrooms and was definitely tricked tf out for it’s time period. i can enter the sewing room on the other side, and i’ve looked all around on the floor, where i believe the door would open up to..
but can’t find the backside of the tiny door! it’s painted over, and feels very secure- almost locked. this house has a complex laundry chute system but this seems way too small to be a part of it.
this room clearly was built as a bedroom, as there is a bathroom and a closet, neither of which are near this bizarre little architectural feature.
Some of the answers:
What do you think it can be for? Leave a comment at our facebook post!
Nestled within the historic Spruce Hill neighborhood of Philadelphia, Pennsylvania, stands a testament to timeless elegance and architectural ingenuity: the Victorian masterpiece crafted by the renowned architect George Hewitt. This majestic residence, steeped in rich history and adorned with intricate details, serves as both a beacon of Victorian charm and a symbol of the neighborhood’s enduring allure.
George Hewitt, a prominent figure in 19th-century American architecture, left an indelible mark on Philadelphia’s landscape with his distinctively designed homes. His keen eye for detail and commitment to craftsmanship are exemplified in this particular gem located in Spruce Hill. Constructed during the height of the Victorian era, this residence stands as a testament to the opulence and sophistication of the time.
From the moment one sets eyes on the exterior façade, it becomes evident that this home is a work of art. Elaborate trimmings, ornate gables, and a meticulously crafted porch invite visitors to step back in time and immerse themselves in the grandeur of the Victorian era. The intricate woodwork, often referred to as “gingerbread,” adorns the exterior, adding a whimsical charm that is quintessentially Victorian.
Upon entering the home, guests are greeted by an interior that seamlessly blends classic elegance with modern comfort. High ceilings, intricate moldings, and stained glass windows evoke a sense of grandeur, while carefully curated furnishings and decor infuse warmth and character into each room. From the ornate parlor to the cozy sitting rooms, every space exudes a unique charm that reflects the owner’s dedication to preserving the home’s historical integrity.
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