Most married couples get asked “when,” but Charli Worgan and her husband Cullen frequently received “why” questions.
The parents, who live in Sydney, are frequently in the spotlight due to their unique forms of dwarfism, most notably when Charli got pregnant with their first child.
After giving birth to their first child, the content Australian mother created a social media account to share updates on their family life with others. Little did she know how well-liked her account would become.
With two stunning daughters under their belt, Charli has amassed over 300,000 Instagram followers.
Charli recently revealed that she was fourteen weeks pregnant with her third child, but the announcement was bittersweet.
Charli has had to undergo thorough genetic testing during each pregnancy. Experts warn that if Charli and Cullen’s offspring inherit just one type of dwarfism, inherit both forms, or are of average height due to their genetic problems, the results might be fatal.
Charli expressed her disappointment at not being able to celebrate her pregnancy’s 12-week mark with her family, as most mothers do.
But at 12 weeks, I was preparing for a procedure called Chorionic Villus Sampling (CVS), which is similar to an amniocentesis, whereas most individuals are pleased to be able to announce their pregnancy. To check the embryo’s genetic composition, a big needle is placed into my abdomen to extract a sample of the placenta, which has a 2% miscarriage rate.
Their two daughters, Tilba, 4, and Tully, 2, each have one of the two varieties of dwarfism, so they waited to find out which of the four possible dwarfisms Charli’s third child would have.
In an Instagram post, Charli explained, saying, “Our child would be of ordinary height.”
Our child would have achondroplasia and be dwarfed similarly to me.
Our child would have geleophysic dysplasia, the same type of dwarfism that Cullen has.
As a result of inheriting both genetic defects, our child would be born with “double dominant dwarfism,” which is fatal according to every expert medical assessment. In the event that this had occurred, I could have decided to terminate the pregnancy or to go on and see how things turned out.
“People Only Know Me as a Freak,” The Wolf Man Struggles to Find a Job Outside the Circus
Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
© Chuy, El hombre lobo / Chuy, The Wolf Man / Facebook
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
Leave a Reply