In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Catherine Deneuve: The 60s Icon Who Still Stuns the World With Her Timeless Beauty
It’s been nearly sixty years since 24-year-old Catherine Deneuve and her older sister Françoise Dorléac starred as twins in *The Young Girls of Rochefort*.
The movie, which also featured a young Gene Kelly, was the last film the sisters made together. Deneuve went on to become internationally famous, while Françoise’s life and career were tragically cut short.
Born into an acting family, Deneuve, now 79, made her first appearance in the 1957 French movie *The Twilight Girls*. Her big break came in 1960 when she starred in *The Umbrellas of Cherbourg*, a romantic musical that highlighted her French style and innocence, launching her into stardom. This was just the beginning of many films she would make with director Jacques Demy.
Her talent for dramatic roles caught the eye of legendary director Roman Polanski, who cast her in the psychological thriller *Repulsion*. Deneuve’s brilliant performance as Carol, a mentally troubled woman, earned her the nickname “ice maiden.” This image was solidified in her next film, *Belle de Jour*, where she played a housewife who secretly works as a prostitute—a role that won her awards and global fame.
In 1963, Deneuve became a mother, having a son with French screenwriter Roger Vadim. She later had the chance to star alongside her older sister, Françoise Dorléac, in the 1967 musical *The Young Girls of Rochefort*. The two sisters were very close, and with their similar looks, playing twins in the movie felt natural.
But just three months after *Rochefort* was released, tragedy struck. Françoise, at only 25, died in a car accident, a moment Deneuve describes as the most painful in her life.
“The day I lost my sister, I lost my joy of living… it is the most painful thing I have experienced,” she shared in an interview with *Paris Match*, a French weekly magazine.
The loss of her sister didn’t slow down Catherine Deneuve, who became the epitome of 1960s glamor, often seen as a femme fatale wrapped in Yves Saint Laurent.
Deneuve, known as the face of French cinema, has appeared in over 120 films throughout her 60-year career. Reflecting on how the industry has changed, Deneuve explained, “Human nature is vast. There are roles more suited to people of my generation. As you age, it’s the same in life—you gain experience and play characters you couldn’t when you were 30.” She added, “It’s hard to find the right path. You can age better in Europe than in America. But women today look younger than they did 50 years ago. Back then, a 50-year-old woman looked her age. Now, not so much.”
Despite her worldwide fame, Deneuve has mostly starred in French films, with only a few roles in English-language films.
Catherine Deneuve explained why she mostly supports French cinema, saying, “I feel very French, but I speak Italian and English, so I feel very European. However, I don’t feel close to English people. Even though England is not far, their sensibility and character are very different.” She added, “I feel closer to Spanish or Italian people because the Latin character is different from the Anglo-Saxon one. We have different educations and cultures.”
Some of her English-speaking roles include *The April Fools* with Jack Lemmon (1969), *Hustle* with Burt Reynolds (1973), *March or Die* with Gene Hackman (1977), and the 1983 cult classic *The Hunger*, where she played a lesbian vampire alongside David Bowie and Susan Sarandon.
In 1972, Deneuve divorced British photographer David Bailey, whom she married in 1965 after meeting at a Playboy shoot. Their wedding guests included Mick Jagger. From 1970 to 1974, she was in a relationship with Italian film icon Marcello Mastroianni, with whom she had a daughter in 1972.
In 1980, Catherine Deneuve delivered an award-nominated performance in *The Last Metro*, starring alongside another famous French actor, Gérard Depardieu. This marked the beginning of a successful collaboration, as they would appear in 15 films together.
Deneuve mentioned that she and Depardieu have similar work styles, saying, “We are both instinctive actors. We prefer to arrive on set and figure things out in the moment rather than rehearse ahead of time.”
In the 1990s, Deneuve received an Oscar nomination and a César Award (France’s national film award) for her role in the French period drama *Indochine*. The film, released in 1992, also won an Oscar for Best Foreign Language Film.
The 2000s introduced Catherine Deneuve to new roles, including the award-winning musical drama *Dancer in the Dark*, where she starred alongside the unique Icelandic singer Björk. In 2010, she reunited with Gérard Depardieu for the eighth time in the film *Potiche*.
After appearing in the 2019 film *The Truth* with Ethan Hawke and Juliette Binoche, Deneuve was filming the French movie *Peaceful* when she was hospitalized due to a stroke. Although her family described it as a “very limited” ischemic stroke, production on the film was delayed until July 2020, when the then 76-year-old actress was able to return. Deneuve, who had smoked since she was 16, finally quit after her month-long hospital stay.
Honored with a lifetime achievement award at the 2022 Venice Film Festival, the French icon, who celebrates her 80th birthday this year, continues to thrive, and we look forward to seeing her in many more films!
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