In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Mom Leaves Note On “Disrespectful” Son’s Door, And Now It’s Going Viral
Being a parent to a cocky, disrespectful teenager is far from easy, and different parents have different approaches to get their children to behave.
One mom, Heidi Johnson, wrote a handwritten letter to her son, Aaron, and shared it on Facebook. She didn’t intend for the post to go viral. She didn’t even intend to make the post public. It was supposed to just be for friends to see, but she does not regret her post or the fact that it’s public.
In the letter to her 13-year-old son, Johnson reprimanded her son treating her like a “roommate.” She went on to give him an itemized bill for rent, food, etc that totaled over $700. If he was going to treat her like a roommate instead of his mom, she would do the same.
Johnson signed the note, “Love Mom,” and she truly does love her son. She followed up the post with another post explaining some backstory to the situation. She also reassured parents who were criticizing her that “I am not going to put my 13 year old on the street if he can’t pay his half of the rent. I am not wanting him to pay anything. I want him to take pride in his home, his space, and appreciate the gifts and blessings we have.”
She added that she never intended for Aaron to pay the bill. Instead, she wanted him to “gain an appreciation of what things cost.” The reason Johnson wrote the note was to make sure her son understood “what life would look like if I was not his ‘parent,’ but rather a ‘roommate.’ It was a lesson about gratitude and respect from the very beginning.”
Johnson also explained that before she wrote the note, her son had lied about doing his homework, and when she told him she was going to restrict his internet access, he responded, “Well, I am making money now.” She explained that the money he was referring to was a little bit of income he was making from his YouTube channel, but not nearly enough to pay for food and rent.
The public note has not hurt Johnson’s relationship with her son. She explained, “He and I still talk as openly as ever. He has apologized multiple times.”
Johnson has also had parents turning to her for advice since she posted the note to her son. She explains, “My post seems to have opened a door, and people feel safe coming to me and asking for advice, venting, or even just have someone bear witness to their experience by listening and opening up and sharing a piece of myself in return.”
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