Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
The fascinating and tragic story of Mary Ann Bevan
The story of Mary Ann Bevan, who was considered ‘The ugliest woman in the world,’ starts in the 19th century, a dark period of the American culture when ‘freak shows,’ traveling circuses showing people with certain deformities and disabilities, were at the peak of their popularity.
Today, it is highly unacceptable to treat people with disabilities with disrespect, but back in the day, no one believed it was morally wrong to dub them freaks.
Mary Ann Bevan was born on December 20, 1874, in Plaistow, East London, United Kingdom. She grew up to become a nurse and was respected by the society. On top of that, she was a very attractive woman who was offered many possibilities.
In 1902, Mary met the love of her life, a man named Thomas Bevan. The two married and welcomed four children together, but their happiness didn’t last long. After 14 years, Thomas passed away, leaving Mary heartbroken.
Her life became difficult as she was left to take care and provide for her children all by herself.
Unfortunately, around the time she turned 32, Mary started experiencing strange symptoms. Her face started changing gradually and she didn’t know what was happening or what caused that change which impacted her both psychologically and financially. Mary’s bones grew big, and her face became deformed. As a result, she lost her job and was unable to provide for her children any longer.
Back in the day, no one could diagnose her, but this poor woman suffered from acromegaly, a hormonal disorder that develops when the pituitary gland produces too much growth hormone during adulthood, when a change in height doesn’t occur. Instead, the increase in bone size is limited to the bones of the hands, feet and face.
Today, a lot more is knows about this condition and there are ways to keep it under control, which wasn’t the case during the time Mary lived.
Crushed, heartbroken, and poor, this woman saw an ad one day which read, “Wanted: Ugliest woman. Nothing repulsive, maimed or disfigured. Good pay guaranteed, and long engagement for successful applicant. Send recent photograph.”
No matter how awful she felt about this ‘job,’ she saw no way out of her situation. She simply needed to do anything in order to feed her children. Above all, she was a mother.
Mary answered the ad and she was soon contacted by the circus’ agent, a man named Claude Bartram, who later shared Mary’s story.
“She was not repulsive at all. She had the kind of face one usually finds in a giant, a powerful, masculine jaw, prominent cheek-bones, nose and forehead, but she was unblemished, healthy and strong. She told me she did not like the idea of placing herself on exhibition, she was shy and did not want to be separated from her children,” Bartram said, according to Daily Star.
“I told her she would earn £10 per week for a year, travelling expenses and all the money from the sale of picture postcards of herself, so she could provide for the education of her children.”
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In no time, magazines were filled with Mary Ann’s photos and everyone recognized her as ‘the ugliest woman on Earth.’
Her popularity brought her to the Dreamland Circus in Coney Island, New York, one of the most famous circuses there were. Mary Ann became an attraction, but then a doctor named Harvey Cushing, a leading neurosurgeon, spotted her and knew there was more behind ger huge face that he wanted to explore thoroughly.
“This unfortunate woman who sits in the sideshow of Ringling Brothers ‘between Fat Lady and Armless Wonder’ and ‘affects white lace hats, woollen mittens and high laced shoes’ has a story which is far from mirth-provoking.
“She, previously a vigorous and good-looking young woman, has become the victim of a disease known as acromegaly,” he wrote in a letter to Time magazine.
Mary Ann spent her life working at the circus and she was reported to have earned a small fortune which enabled her to send her children back to England where they attended boarding schools.
She endured a lot, but she did it all for her children.
Mary Ann died at the age of 59 of natural causes. Her final wish was to be buried in her homeland, England, and her children fulfilled her wish. She is resting at the Ladywell and Brockley Cemetery in South London.
This woman’s sad, yet fascinating life story speaks of the mother’s love for her children more than anything else.
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