A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

My Mother-in-Law Moved in with Us After Her House Was Flooded – I Was Shocked When I Overheard Her True Reason for Staying

I blinked. Flooding? That didn’t sound right. She lived in a freshly renovated house, nothing but top-tier everything. I hadn’t heard a single complaint about it until now.

Before I could even begin to process, Joe appeared behind me. He looked guilty, eyes darting anywhere but at me. “Yeah… about that.” He rubbed the back of his neck, awkwardly shifting his weight. “Mom’s gonna stay with us for a bit. Just until the house gets fixed.”

“And you didn’t think to tell me?” I asked, my glare piercing.

He shrugged like it was no big deal. “It’s only for a little while, babe. You and Mom get along, right?”

Get along? If by “get along,” he meant the passive-aggressive remarks about how we’d been married for six years and still hadn’t given her any grandkids, then sure. We were best friends. But I plastered on a smile, the kind you give when you’re two seconds away from snapping. “Of course. I totally understand.”

Hours later, after I’d pretended everything was fine, I got up for some water. As I passed the kitchen, I heard them talking in hushed voices.

“You didn’t tell her the real reason, did you?” Jane’s voice was sharp, like a knife slicing through the night.

Joe sighed. “No, Mom. I didn’t.”

“Well,” Jane huffed, “I’m here to keep an eye on things. Married this long with no children… someone’s got to figure out what’s going on. Don’t worry, I’ll handle it.”

My stomach twisted. This wasn’t about pipes. She was here to snoop. To pressure me about kids. To “handle” me. I stood frozen in the hallway, blood boiling. What the hell had I just walked into?

The next morning, I woke up with a plan. If Jane wanted to play her little game, I’d play mine. But I wasn’t going to get into a battle of wits with her. No, I was going to kill her with kindness. By 8 a.m., I had already started phase one of my “operation.”

I cleared out our entire master bedroom. Every piece of clothing, every picture frame, every trace of Joe and me was stuffed into the tiny guest room. I even found Jane’s favorite floral bedspread from the back of the linen closet and spread it over the bed like I was preparing a five-star hotel suite.

When I was done, I stood in the doorway, surveying my work. The bedspread was pristine, her cat pictures were lined up on the dresser, and to top it off, I made a “Welcome to Your New Home” basket. Bath bombs, lavender-scented candles, fancy chocolates.

By the time Joe got home from work, I was already sitting in the cramped guest room, arranging our clothes into whatever space I could find. He walked in, his forehead creased with confusion. “Why are you in here?” He peeked around the corner. “Where’s our stuff?”

“Oh, I moved everything,” I said, turning to him with the sweetest smile I could muster. “Your mom deserves the master bedroom, don’t you think? It’s only fair. She needs the space more than we do.”

His eyes widened in disbelief. “You… gave her our bedroom?”

“Of course,” I said with a grin. “She’s family, after all. We’ll be just fine in here.”

Joe stood there, mouth half open, processing what I’d done. But what could he say? Jane was his mother, and I wasn’t technically doing anything wrong. He sighed and walked out of the room without another word.

For the next few days, I made sure Jane was living like royalty. Fresh towels every morning, little snacks placed on the nightstand, and those lavender candles I knew she loved.

She wandered around the house like she owned the place, smiling at me like she’d won. But while Jane was lounging in luxury, Joe was starting to crack. Sharing the guest room was driving him nuts. Not just the lack of space, but his mom’s new obsession with prepping him for fatherhood.

Every morning, without fail, she’d hand him a schedule of vitamins.

“You need to take these, Joe,” she’d say, thrusting a multivitamin at him. “It’s important to get your body ready if you want healthy kids.”

Joe would roll his eyes but take the pills just to keep her quiet.

It didn’t stop there. “Should you really be watching TV at night?” she’d ask over dinner. “That’s not very baby-friendly. You should be reading parenting books. Or exercising. And no more video games! You need to mature, Joe. Fatherhood is serious.”

By day four, I found Joe sitting on the edge of the bed, staring at a stack of parenting books his mom had ordered online.

“I think I’m losing it,” he muttered, holding up a book titled “What To Expect When You’re Expecting.” “She expects me to read this.”

I couldn’t help but smile. “Well, Joe,” I said, suppressing a laugh, “you did say we’d be just fine, didn’t you?”

It was relentless. Jane had taken things up a notch. One evening, she handed Joe a neatly typed list of “fertility-boosting” foods. Kale, quinoa, grilled salmon—no more burgers, no more pizza. She smiled sweetly as if she was doing him the world’s greatest favor.

“Your future kids will thank you,” she chirped.

Joe stared at the list like it was a death sentence. “Wait, no pizza? Ever?”

“That’s right, dear,” she said, patting his shoulder. “I’ve planned all your meals for the week. You’ll feel so much better once you start eating clean.”

That night at dinner, we sat around the table eating dry salmon and tasteless kale. Jane watched Joe like a hawk, her eyes flicking from his plate to his face. He shifted uncomfortably, picking at his food.

“Joe,” she started, “did you take your vitamins this morning?”

He sighed, stabbing a fork into the kale. “Yeah, Mom. I took them.”

“And what about the gym? Did you make time for that? You know, you’ve put on a little weight. It’s important to be in shape if you want to be a good father.”

I couldn’t help it. I kicked him under the table to stop myself from bursting out laughing. He shot me a look, his expression torn between frustration and desperation. After days of this, it was finally getting to him.

Later that night, once Jane had gone to bed, Joe turned to me, rubbing his temples. His voice was low, almost pleading. “I can’t do this anymore, Tiana. The guest room, the vitamins, the baby talk… I’m going insane.”

I bit my lip, trying to suppress a smile. “You have to admit,” I said, failing to keep the amusement out of my voice, “it’s kind of funny.”

His eyes narrowed. “It’s not funny.”

I let out a small laugh. “Okay, okay, it’s a little funny.”

Joe groaned and collapsed onto the bed. “I booked her a room at the hotel down the street. I can’t take another day of this.”

The next morning, he broke the news at breakfast.

“Mom, I’ve booked you a nice hotel nearby until the repairs at your house are done. You’ll be much more comfortable there.”

She blinked, clearly surprised. “But I’m perfectly fine here! And besides, isn’t it time you two got serious about giving me grandkids?”

Joe’s jaw clenched. “Mom, we’ll decide that when we’re ready. For now, the hotel is best for everyone.”

For a moment, Jane just stared at him. Then, realizing she had no leg to stand on, she reluctantly nodded. “Well… if you insist.”

By the end of the day, she was gone. The house was ours again.

As the door clicked shut behind her, Joe collapsed onto the couch with a dramatic sigh of relief. “Finally.”

I grinned, sinking down beside him. “So… kale for dinner?”

He groaned. “Never again.”

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