Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
ABANDONED STRAWBERRY HOUSE
The house was built in the late twenties of the twentieth century for banker Dimitar Ivanov and his wife Nadezhda Stankovic. Inside, the accent falls on the red marble fireplace located in the reception hall. There is a podium for musicians as well as crystal glasses on the interior doors. Several bedrooms, beautiful terraces, a large study room and service rooms. Nothing of the furniture is preserved, but it is known that high-class Sofia citizens at that time preferred furniture from Central and Western Europe.
The exterior is a large front yard facing the street, separated from the sidewalk by a beautiful wrought iron fence. Triple staircase to the entrance of the house, but it is always very impressive that the special portals for carriages and carriages on both sides of the yard. Even today I imagine a cabin with the members of the invited family entering the yard of the house through one portal, the horseshoes and the carriage staying in the space behind the house, specially tailored for that while waiting for the reception to end and go out again from the yard, but through the other portal.
Banker Ivanov’s family lived happily in the house, at least until 1944. After the war the property was nationalized and originally housed the Romanian embassy. Later in the year, the house was a commercial representation of the USSR in Bulgaria, as well as the headquarters of the administration of various communist structures of unclear purpose.
In the 90’s the house was restituted and returned to the heir of the first owner-banker Dimitar Ivanov. Since 2004 the property is the property of the director of Lukoil-Valentin Zlatev, who has not yet shown any relation to this monument of culture. The beautiful house once ruined for decades and is now sadly sad.
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