Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

Bride Doesn’t Want Her Dad in Wheelchair to Walk Her Down the Aisle until She Sees Him on TV — Story of the Day

A woman doesn’t want her father to walk her down the aisle because she is embarrassed by his wheelchair. However, when she sees him on TV a few days before the wedding, she regrets her decision and changes her mind.

When Lisa Terrell’s mother died when she was just two years old, her father, Edward, took up her care. Caroline Terrell had died in a terrible hurricane that hit their town years ago, demolishing their home and leaving Edward in a wheelchair due to a severe injury.

Nonetheless, nothing could stop Edward from raising Lisa with love and giving her the finest of everything. He was a well-known journalist and began working remotely following his injury to provide for them.

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

However, most people in Lisa’s life were unaware she had a father until he paid her a surprise visit at her school one day.

Lisa had always told her friends that her father was too busy to spend time with her, which is why he never attended school functions or parent meetings. However, the reality was that the invitations never made it to Edward since Lisa was embarrassed by him and didn’t want her friends to see him.

She adored him as a youngster, but as she grew up, the image of her father in a wheelchair mortified her and wrecked her relationship with him.

She was confused as she looked at the television and noticed her father sitting alongside the host.

Still, Edward never reneged on his duties. He was always there for his daughter and saved enough money to send her to a top university.

On the other hand, Lisa did not want him by his side. In fact, when she met her boyfriend, Harrison, at university, and they decided to marry after graduation, she didn’t want Edward to be there for the wedding.

As a result, she freaked out when Harrison asked her to invite Edward to dinner at his parents’ place. His parents were wealthy and of the upper crust. What would they think if they saw an elderly man in their home in a wheelchair? Lisa was ashamed by the very thought of it.

However, based on Harrison’s enthusiasm in inviting Edward to dinner, Lisa realized she didn’t have an out this time. So she had to fake a grin and say she’d ask Edward if he was free.

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

When Lisa told Edward about the invitation to dinner, he was more than just free. He was overjoyed for Lisa for finding someone who adored her.

On the night of the dinner, he dressed nicely in a suit and Harrison’s family received him warmly. The young man’s parents were impressed that Edward had reared a daughter on his own. Besides, Edward had a wonderful sense of humor, and everyone had a great time at the dinner. Everyone except Lisa, whose cheeks were flushed crimson with shame the entire time since the man in a wheelchair was her father…

A few weeks before the wedding, Lisa made up her mind. She confronted Edward one night over dinner and notified him that he would not be on the wedding guest list.

“Dad, I wanted to talk to you about the wedding,” she began, glancing at her plate and moving her fork around the spaghetti.

“Yes? What exactly is it, honey?” Edward inquired. “Is there something bugging you about the wedding, the expenses? If that’s the case, I have some bonds that we could use. After all, I did keep it for you…”

“No, dad! It’s just that,” Lisa paused for a moment, “Harrison and I intend to hold the wedding here in New York, but the problem is that we’re having it at one of the city’s largest hotels, and… I just thought it would be best if you didn’t attend the event. You know, there would be way too many guests!”

Edward’s smile vanished as he stared at Lisa, speechless. “I – I don’t understand…What’s the problem?”

Lisa sighed and fixed her gaze on him. “Look, Dad, it’s just that… The guests will be exclusive, and they’re all businessmen and high-class people. Imagine a man in a wheelchair walking his daughter down the aisle in front of them… I don’t know…It’s just weird.”

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

“A man in a wheelchair is weird?” Edward’s eyes welled up. He couldn’t believe Lisa was indirectly cutting him off the wedding guest list. But he grasped the cue and forced a grin, hiding his tears from her.

“Is that it? Oh, you’re right! After all, this old age is catching up with me,” he said, faking a laugh. “I may not be able to handle such a large gathering. It’s ok – it’s ok!”

“Thanks for understanding, dad,” Lisa said bluntly and went away to her room. Before dissing Edward, she didn’t think twice about all the years of love and care he’d given her, but eventually, she regretted it.

A few days later, she was watching a show titled “American Heroes” on TV when the emcee announced Edward’s name. She was confused as she looked at the television and noticed her father sitting alongside the host.

Soon after, the camera focused on a screen that displayed images of Edward in a wheelchair and the hurricane that had hit their town years before. He turned out to be one of the brave journalists who had managed to save his family and help his neighbors throughout the disaster.

Edward had a solemn expression as he narrated the whole story of how he’d managed to help people, especially his family.

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

“I will never forget that day. It was terrible… we lost practically everything,” he explained. “My wife died in the accident, and my daughter was just two years old at the time. As the debris surrounding us fell, I noticed my daughter standing right there…underneath that spot where it was falling.

“I went to save her and took her into my arms, but as I ran, a large section of the ceiling cracked and crashed on my back, causing a spine injury that prevented me from walking again.”

Lisa’s jaw sank to the floor, and her tears welled up when she heard that. “Dad saved me?” she was shocked.

“It was hard for me,” Edward continued. “But you know, you can’t really avoid your fate. So I gathered courage, knowing I just couldn’t give up in life, especially because I know I had a daughter who was now reliant on her father.”

Lisa was utterly embarrassed about herself at this point. She cried after Edward’s interview, cursing herself for being a terrible daughter, and decided to make it up to him.

So on her wedding day, she did walk down the aisle with Edward, but before the wedding ceremony began, she needed to tell the guests something VERY important…

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

As she took the microphone near the altar, she approached Edward, who was sitting among the guests, fell on her knees, and hugged him. “I know this is one of the most important days of my life, and I’ve been waiting for it for so long!” she cried, holding his hands in hers. “But none of this would have been possible if my father had not been by my side.”

“Ever since mom passed away, I never saw dad saying even once how hard it was for him to raise me alone. He did have hard days, but he never showed me the slightest hint of it. But what did I do? I was about to remove him from the wedding list because I was embarrassed about him being in a wheelchair. Yes, that’s right!”

“If only I had known that dad is in a wheelchair because he injured his back while saving me, I’d have never ever done that. I have been horrible to the man who loves me the most!”

“So I’d like to apologize to him in front of everyone today. I apologize for being the worst daughter to you, dad,” she said, facing him. “You can hate me for the rest of my life. I am sorry.”

For illustration purposes only. | Source: Unsplash

For illustration purposes only. | Source: Unsplash

Edward wasn’t expecting Lisa to own her mistake publicly. He was surprised but at the same time overcome with emotions at seeing his daughter realize her error, so he forgave her.

“Oh, come here,” he cried, embracing her. “Everyone makes mistakes,” he said. “But if you recognize them and work to fix them, you should be forgiven.”

Everyone was moved to tears and applauded the heartwarming reunion.

What can we learn from this story?

  • Love and respect your parents because they go above and beyond for you. Liza realized this when she heard her father’s story on TV and apologized to him for being rude.
  • Everyone makes mistakes, and if they realize it, they should be forgiven. Edward forgave her daughter when he saw she felt guilty for what she’d done.

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