Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Mom of rare twins with Down syndrome shuts down critics with photo showing how beautiful they are
Twin pregnancies are still quite uncommon, despite a 72% increase in likelihood between 1980 and 2018. Twins are born in about 33 of every 1,000 births.
What are the probabilities of having identical twins? Out of 1,000 births, three to four are identical twins on average. So once more, not very common.
Savannah Combs, age 23, was overjoyed to learn she was expecting twins. She then discovered that they both have Down syndrome, which is also unusual.
Of course, the information was upsetting. Savannah and her husband Justin Ackerman were aware that due of her illness and the state of her children, some people would judge them.
But Savannah finds that to be the same thing that makes them so beautiful.
“It’s very rare what they have, but they’ve been my little gems,” she mentioned.
Savannah, a Middleburg, Florida native, posted videos of her postpartum journey on TikTok with her kids Kennadi Rue and Mckenli Ackerman, and the videos immediately acquired popularity.
Savannah said in one of her videos that she was advised to abort her children because they wouldn’t survive.
She made the choice to keep them and give them a shot.
”Every [prenatal] appointment they were alive was a blessing to me,” Savannah explained.
Her spouse was gone at boot camp when she found out they both had Down syndrome.
When Savannah was admitted to the hospital, she was 29 weeks along with her pregnancy and gave birth to twin daughters. Kennadi Rue and Mckenli Ackerman, identical twin daughters, were born on May 12, 2021.
The twins had to spend a few weeks in the NICU before going home because they were born two months early.
“They’re called mono di twins, meaning that they had their own sacs, but they shared the same placenta, meaning that they were going to be identical,” she said.
“Mo di twins as it is, it’s like very rare. And then you throw Down syndrome on top of it, it’s like one in 2 million.”
They are just like any other youngster, according to Savannah, despite having an uncommon disease.
“They have feelings. They have a beating heart. They know how to talk. They know how to do things you do. They will get there,” she said.
“Like I said, it may be a step behind but they’re going to do it. I’ve learned these kids are feisty little things and happy little things.”Savannah posts wonderful updates on TikTok as each youngster continues to reach their milestones.
“I’m going to let them know that they’re just like us and they’re going to get there as long as they put their minds to it.”
Nevertheless, some people feel compelled to be critical of Savannah and her family. The young mother was forced to respond to some extremely cruel people on social media as a result.
”I wouldn’t want those babies; if mine came out like that, they would be straight up for adoption,” one person wrote to the mother.
Savannah, though, had the ideal response, which she posted on Facebook.
“I said, good thing they weren’t born to you and were born to me. God knew what he was doing by giving these babies to the right parents who would love them regardless.”
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