Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
MY DAD JUST WOKE UP FROM A COMA, SAYING HE HEARD EVERYTHING IN THE HOSPITAL ROOM & EXPOSING MY WFE.
The sterile scent of the hospital room hung heavy in the air, a stark contrast to the joyous atmosphere that had filled it moments before. My father, his face pale but his eyes surprisingly alert, looked at us, a mixture of exhaustion and a strange intensity in his gaze.
“Dad,” I began, my voice trembling with emotion, “how was it? Did you have any dreams? Any… anything?”
He looked at each of us in turn, his gaze lingering on my wife, Leah, who had gone deathly pale. “Not only dreams, son,” he rasped, his voice weak but surprisingly clear. “I heard EVERYTHING that happened in this room.”
A collective gasp escaped from the assembled family members. My mother, tears streaming down her face, reached for his hand.
“Dad,” I said, my voice strained, “what do you mean?”
He turned his gaze back to me, his expression serious. “There’s something you need to know about your wife,” he said, his voice gaining strength. “Something you need to understand.”
Leah, her face ashen, tried to interject, but my father raised a frail hand to silence her. “She’s nothing at all like what we think she is,” he continued, his voice unwavering. “Once, she came here—without you.”
The room fell silent. The only sound was the rhythmic beeping of the heart monitor. Leah’s eyes, wide with fear, darted around the room.
“She came alone,” my father continued, his voice gaining strength. “She cried, she talked about… about how she was only with me for the money. She said she was relieved when I got into the accident. Said she was finally free.”
The words hung heavy in the air, each one a hammer blow to my heart. I looked at Leah, her face a mask of denial and fear. Her eyes, once filled with love and concern, now held a cold, calculating glint.
“Dad,” I whispered, my voice barely audible, “are you sure? Maybe you misheard?”
He shook his head slowly. “I heard every word, son. Every cruel word.”
The world seemed to tilt on its axis. The woman I loved, the woman I had vowed to cherish, was a stranger. A stranger who had pretended to love me, who had plotted my father’s demise.
Anger, cold and furious, surged through me. I wanted to scream, to lash out, to tear her apart. But instead, I felt a deep, suffocating sadness. The woman I had loved, the woman who had filled my life with joy, had been a lie.
Leah, her face contorted in a mixture of fear and defiance, tried to speak, but no words came out. She turned and fled from the room, her footsteps echoing down the hospital corridor.
I turned to my father, his gaze filled with a mixture of pity and regret. “I’m so sorry, son,” he whispered, his voice cracking. “I wish I could have warned you sooner.”
As I watched Leah disappear from view, I knew my life would never be the same. The trust I had placed in her, the love I had cherished, had shattered into a thousand pieces. The man who had awakened from a coma had not only saved my life but had also saved me from a lifetime of heartbreak.
The road ahead was uncertain, filled with pain and disillusionment. But I knew, deep down, that I would rebuild. I would learn to trust again, to love again. But this time, I would be wiser, more cautious. I would never again allow myself to be blinded by love, to let my guard down, to let someone else define my happiness.
The experience had left an indelible mark on me, a constant reminder of the fragility of trust, the importance of vigilance, and the enduring power of truth.
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