Rebecca Callaghan faced a challenging pregnancy in 2012 when doctors decided to induce labor early due to excess fluid around her baby.
It wasn’t until about an hour after Matilda was born that any issues were suspected. Initially, a large blue mark on her face and extending down her body was mistaken for a bruise. However, just 30 minutes later, doctors informed Rebecca and her husband that it was, in fact, a birthmark.
Two weeks postpartum, Matilda was diagnosed with Sturge-Weber syndrome, a rare neurological condition associated with skin abnormalities that can lead to paralysis, learning difficulties, and seizures.
Matilda’s health quickly deteriorated, necessitating her transfer to Alder Hey Children’s Hospital in Liverpool, England. The parents’ joy transformed into deep anxiety, as they feared they might lose their newborn. “We couldn’t travel with her because she was so sick. Watching her taken away, we were terrified we’d never see her again”, her father shared with the Daily Mail.
Adding to their worries, they discovered Matilda had two heart defects. Despite the grim prognosis, she displayed remarkable resilience, successfully undergoing surgery. She also began laser treatments to address her unusual birthmark, a process that could take up to 16 hours to fully fade.
“She receives treatments every two months. The laser leaves her skin red and covered in blisters, which eventually heal”, her father, Paul, explained in a 2016 interview. He recounted the misconceptions from others, stating: “People assume we’ve somehow harmed her”.
Although these treatments are painful, Matilda is a cheerful child. Sadly, many stare at her or make hurtful remarks, even asking if her parents had caused her birthmark by allowing her to burn herself. “They only see the surface and make judgments. I wish they could see beyond the mole to the beautiful person she is”, Paul lamented.
In addition to her birthmark, Matilda faces vision challenges and struggles to walk. Yet, with the help of specialized equipment, she has taken steps on her own.
Despite her struggles, Matilda remains upbeat and resilient. “She’s incredibly stubborn; she’ll do things her way or not at all!” her father noted, emphasizing that she always greets others with a smile. The family regularly confronts stares, insults, and teasing, but they remain proud of Matilda. “Despite everything, she’s thriving”, her father said.
Now nine years old, Matilda’s family recently shared an updated photo of her in her wheelchair in June 2019. They have set up a fundraising page to raise £5,000 for a new wheelchair, enabling Matilda to enjoy her favorite activity: spending time outdoors, away from crowds. “We want to help her continue doing what she loves”, the page states.
Days before she died, a courageous young girl was brought down the aisle by her father to marry her school sweetheart
If you ask any parent in the world, they’ll probably tell you that they would do anything for their child. Our lives transform in the most profound ways the day we become parents. We acknowledge that we will take care of, treasure, and worry about the new life we have brought into the world for the remainder of our days here on Earth.
However, regrettably, there are some things that parents are powerless to stop. Each year, far too many children suffer from circumstances and illnesses that are completely beyond their control. Accidents and disease are as much a part of human life as happiness and celebration.
The day Alina and Aaron Edwards found out that their nine-year-old daughter, Emma, had been diagnosed with acute lymphoblastic leukaemia, altered their entire world. They were dealt a heartbreaking blow when physicians informed them after a few months that there was nothing more they could do to save Emma’s life, despite their obvious anguish and desperation to hold onto the hope that she could overcome cancer.
With the limited time they had left, Emma’s anguished parents resolved to do everything in their power to grant their daughter’s desires. Of course, it goes without saying that the great majority of kids would relish the opportunity to meet a famous hero in such a situation, maybe go to Disneyland or watch their idol compete on the pitch.
Emma, however, had completely different wishes. She requested permission to wed DJ, her ten-year-old boyfriend. After Sunday, I will have so much more to say and so many people to thank, but for now, my brain is simply not working properly, and I
Emma’s campaign quickly gained a lot of support from her neighbourhood. The group of supporters and volunteers took on the moniker “Emma’s Army” and decided to fulfil this young girl’s aspirations before it was too late. Emma’s family eventually received assistance in raising money from the Make-A-Wish Foundation. “Most kids want to go to Disneyland, but Emma wanted to get married, be a wife, and have three kids,” Emma’s mother Alina clarified.
Reports state that Emma and DJ had attempted to get married before their “wedding.” When they were eight years old, the two kids attempted to tie the knot in school, choosing their own groomsmen and bridesmaids from among their peers. Sadly for Emma and DJ, though, their teacher would not allow the wedding to take place, no matter how informal.
But this time, their second attempt at marriage had the support of many wonderful people who wanted Emma to have the day of her dreams, as well as the approval of their parents. In less than two days, we put it together, and everything was donated in the end. It came together so beautifully and was so wonderful, Alina disclosed.
When the big day finally arrived, it was recorded on tape featuring interviews with a few guests, including the DJ and the groom. She struck me as the most gorgeous person I have ever laid eyes on. I’ve adored her ever since,” DJ remarked. Alina, on the other hand, was gushing about her daughter’s charming young partner. She sent a tearful message on Facebook that said
Since third grade, DJ has been Emma’s “Boo bear.” I promise that watching these two adorable together will make your heart melt. Her heart leaps when DJ helps and shields her. She adores him. I also know that he adores her! He has supported her through all of her highs and lows, never letting her smile. DJ and his family will always remain connected.
Emma’s big day finally arrived on June 29 when she arrived at the location pushed by her parents in a wheelchair. For the event, she dressed elegantly in purple, and she grinned as her father led her down the aisle. After exchanging vows and rings, Emma and DJ finished the ceremony with a kiss from DJ to his bride.
Emma went back to her bed to recuperate after the wedding, but everyone could see how happy she was to have experienced her special day. After her battle, young Emma passed away a few weeks later on July 11, 2023.
Emma’s obituary stated: “On July 11, 2023, Emma Brooks Edwards passed away and was embraced by her closest loved ones as she entered paradise in the tender arms of her great-grandma Frannie Annie. Emma, then ten years old, fought leukaemia, dubbed “The imposter,” for sixteen months.
The Edwards family was completed with the birth of Emma, our little unicorn, on April 22, 2013, to devoted parents and three elder siblings. She cherished DIY projects, clever jokes, her loved ones, Jesus, and her brand-new “husband,” DJ. To everyone she encountered and to those who loved her, Emma was an inspiration. She was the most wonderful friend, cousin, aunt, “wife,” haha, sister, grandchild, and cousin. Her legacy is one of humour, fortitude, and unending love for everyone.
Emma, rest in peace. A young girl of such beauty, taken far too soon. Please join us in extending our condol
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