A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

\

Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

Can You Guess What These 6 Items Were Used For?

If you imagine you can guess what these aged timey objects are, then have a look.

It is time for another enjoyment recreation of What Is It? From antiquated applications to strange ornamental goods, these secret goods might have you scratching your head! Some of these products may look odd, but consider a guess and see if you can figure out what persons generations back would have completed with one of a kind these goods.


OLYMPUS Digital Camera
1) It is created from mixed metals, has slots in the top and connectors at the sides. Do you know what this was utilized for a long time back?

What is it?

For practice and bus rides, this was in which the conductor dropped the coins from fares in (the slots) and then he could pull them out from the bottom, neatly stacked, to give as modify back. The hooks at the facet are for attaching to his belt. A modern day version of this is however in use in the incredibly handful of locations in which payment is not necessary upon entrance.

See if you know the future a person!

OLYMPUS Electronic Camera
2) This cap has a female printed style and design, lined in blue, with chin straps. The cap as soon as upon a time in all probability had buttons or ties to hold it on. The form of the hat bears some resemblance to that of an aviatrix cap. Oh, and it’s filled with sand!

This strange cap is an early, handmade variation of a swim cap. The channels and stitching are machine-sewn and then filed with sand. It was well-liked in the 1920s to design swim caps after the popular aviatrix, but modern day rubber materials had been tricky to come by for the residence sewer. Because sandbags block h2o, it was a rational strategy, leaving the wearer free of charge to pick her material design and style (as an alternative of black or yellow rubber).

See if you can guess the following one particular!

5) This huge wooden drum has a lid with handle and footed foundation. There is a crank on the side. Have you viewed a single of these just before?

This cedar butter churn was employed for creating more substantial portions of butter. The other side reads “Farm Master Dairy Supplies” but we couldn’t enable you go through that- it would have specified it away!

Do you know the upcoming just one?


OLYMPUS Electronic Digital camera
6) This metal stand has three tiers, each individual with notches reduce out of it. This piece stands on a few legs and is about 4 toes tall. Have any thoughts?

The screen gives it away, but it wasn’t Coca Cola bottles that this stand was developed for. As part of many marketing and advertising tactics, Nehi produced these triangular stands to exhibit their soda bottles, the necks of which fit properly into the notches. Right before 6 packs caught on, these stands could be observed in corner retailers and grocery stores for the duration of the Depression.

Antiques can come to be thriller products as they transform about time and turn out to be unrecognizable. But sometimes, it is the name of an product that improvements! Below are 12 aged names for objects we all grew up with that you just don’t hear any more (except you are like us…we still use these outdated-trend conditions all the time).

Related Posts

Be the first to comment

Leave a Reply

Your email address will not be published.


*