Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
“Does anyone know what this is?” I found it in a bag of kitchenware items at the secondhand store.
You’re not alone if you’ve ever been left wondering what the purpose of a weird kitchen appliance is when you’re staring at it. We’re going to solve the puzzle of one such tool—the onion and vegetable slicer—today.
Have you ever found it difficult to cut vegetables, such as onions, evenly? Do you wish you could get those perfectly thin slices faster and more effectively? You don’t need to search any farther! Maybe an onion and vegetable slicer is the answer you’ve been looking for.
What what is an onion and vegetable slicer, then? It’s essentially a kitchen utensil that makes slicing onions and other veggies very easy. Usually, these useful devices have a base with slots or blades.
An onion and vegetable slicer’s main goal is to produce accurate, consistent slices. This tool helps you create uniform thickness in your slices, which is very useful when you’re cooking or plating items that need to be cooked evenly.
An onion and vegetable slicer is very simple to use. As you cut, it gives the vegetables support and stability. It is especially useful for little or asymmetrically shaped veggies that are difficult to hold stable in your hands alone. You’ll save time and work in the kitchen because the blades or slots are made to cut food into thin, even slices.
Vegetables were traditionally sliced by hand using knives. But as technology developed, people started creating tools to speed up and improve the efficiency of the process. Adjustable blade manual vegetable slicers first appeared in the late 19th and early 20th centuries. With the help of these slicers, users could quickly achieve a level of precision that was difficult to achieve by hand by adjusting the thickness of the slices.
Significant developments in kitchen equipment also occurred with the onset of industrialization. The mid-1900s saw the rise in popularity of electric food slicers. Onions and other vegetables could be sliced with these devices, which are frequently used to slice meats and cheeses.
Manufacturers realized over time that they needed specialized slicers made just for onions and other vegetables. Usually, these slicers included slots or blades designed to cut thin, even slices. They gained popularity among home cooks who wished to expedite the process of preparing meals.
You may be asking where to get an onion and vegetable slicer now that you know what one is. These culinary implements can be found in many different shops and online marketplaces. Here are some alternatives to think about:
Kitchenware Stores: Look into specialty cooking supply stores or kitchenware stores in your area. They frequently have a large assortment of cooking tools, such as slicers for vegetables and onions. Ask the employees at the store for help or look for them in the kitchen tool department.
Online retailers: There are a ton of amazing kitchen gadgets available on the internet. Onion and vegetable slicers are widely available from major online retailers such as Amazon, Walmart, and Target. To make an informed decision, you may quickly browse through several models, evaluate costs, and read user reviews.
Thrift Stores and Yard Sales: These locations, like the one where you discovered your mystery slicer, are excellent for finding reasonably priced kitchenware. You may find an excellent-condition onion and vegetable slicer for a fraction of the original cost.
Don’t forget to select a slicer based on your requirements and tastes. Think on things like the kind of veggies you’ll be slicing, the slicer’s size, and how simple it is to use and clean.
An onion and vegetable slicer can be a useful addition to your kitchen toolkit, regardless of your level of culinary expertise or need to streamline meal preparation. So go ahead and choose the one that works best for you, and bid adieu to irregularly sliced vegetables and onions!
Leave a Reply