Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

Of her 6children, Angelina Jolie has disinherited five

Celebrating her acting career and philanthropic efforts, Angelina Jolie has been a mainstay in Hollywood for many years. In addition to her notoriety, she is descended from Hollywood aristocracy and has a long family history in the entertainment business.

Angelina has received praise from all around the world for her achievements, but she also inherited a complicated web of personal struggles, cultural pressures, and family relationships.

Angelina Jolie was born in Los Angeles, California, on June 4, 1975. Her parents are the famous actors Jon Voight and Marcheline Bertrand. Actor Jon Voight, her father, is renowned for his performances in iconic films such as “Coming Home” and “Midnight Cowboy.” He has won multiple Academy Awards.

Angelina was introduced to the glamour and glitz of Hollywood at a young age, along with the responsibilities and expectations that accompany being from a well-known celebrity family.
But a stormy personal journey began when her parents divorced when she was still a kid due to their volatile relationship.
With the success of her own career, Angelina Jolie rose to become a global celebrity. She won an Academy Award for her performance in “Girl, Interrupted” and starred in big movies like

“Mr. & Mrs. Smith” and “Lara Croft: Tomb Raider.”
In addition to her career as an actress, she gained recognition for her humanitarian work by joining the UNHCR as a Special Envoy and then as a Goodwill Ambassador.
Her dedication to international causes like as gender equality and refugee rights has solidified her reputation as a socially conscious celebrity whose influence extends well beyond the cinema.

The legacy of Angelina Jolie is more than just her success in Hollywood; it’s a nuanced combination of personal achievements, family history, and an unwavering commitment to improving the world.

According to reports, Angelina Jolie revealed the specifics of her bequest, indicating that she intends to leave her $116 million fortune to her son Maddox, out of her six children.
Angelina Jolie has decided to give her son Maddox her whole fortune as a thank you for supporting her during her divorce from Brad Pitt. Jolie was upset that out of her six children, only one truly assisted her in obtaining a divorce.

Those who know the Jolie/Pitt family well say that Brad is angry with Jolie for treating Maddox like her “Golden Child” and maintaining the other kids out of her money.

Angelina Jolie Is Leaving Her Son Maddox With A Millionaire Jolie finally made the decision to leave Maddox her business out of loyalty, ignoring the other five children.
The informant claimed that Brad was “ready to be tied over Angie’s moves and is in an incredible rage.”It seemed like they had finally reached a divorce settlement. However, he had not anticipated this Maddox circumstance.

Jolie allegedly filed for divorce from Pitt in September 2016 due to her growing dissatisfaction with his parenting style. The information was purportedly released to the public following an unfortunate incident involving Brad, Angie, and Maddox, which led to one of the family’s most contentious celebrity divorces and child custody disputes in recent memory.

Jolie said that Pitt hit Maddox during the argument. The Los Angeles County Department of Children and Family Services conducted an inquiry, but no charges were brought. Brad, who is reportedly still quite upset over the whole thing, has reportedly been particularly enraged by Angelina’s refusal to update the record, according to a family member.

The acquaintance said that Brad believes his other children are being treated unfairly and that he will not put up with it.
Angelina Jolie’s decision to leave out Pax, Zahara, Shiloh, and the 10-year-old twins Knox and Vivienne infuriated Brad Pitt. Brad believes that giving Maddox complete control is wrong.

The insider claims that Maddox helped his mother through their divorce and that she has since appointed him CEO of her film firm.

Even though he could be her “golden boy,” Brad thinks she should be reminded of her other five children.

If this charge turns out to be accurate, Pitt and Jolie will undoubtedly have bitter arguments for years to come about the welfare of their kids.

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