When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
Sister Seized Family’s Entire Inheritance and Only Left a Tattered Blanket for Brother with Disability – Story of the Day
Edward was devastated when his sister, Sarah, called him and told him their grandmother died. He never imagined she would also plan on taking almost everything, leaving him only an old blanket…
“Grandma Sandy is dead. Are you coming to the funeral?” Sarah said coldly through the phone.
“Sarah, how can you speak so callously? Of course, I’m coming to the funeral,” Edward told his big sister. She probably asked because it was hard for Edward to move around with his disability. He was in a car accident several years ago and lost both legs.
Edward grabbed an old blanket from his grandmother’s house. | Source: Shutterstock
Since then, his family lived on his wife’s paycheck, which was not much. Gianna worked hard, but she also had to help him and mostly raise their two kids. Edward had not been able to find a proper job, but he was currently waiting for a work-from-home offer.
Sarah’s news was devastating. He loved his grandmother dearly, and unlike everyone else in the family, she tried her best to help his family after the accident. She didn’t have a lot of money but babysat the kids often.
“Well, whatever. She was old already. Anyway, I’m calling to tell you to get here fast, or I’m taking almost everything,” Sarah added.
“What do you mean? Get where?” Edward asked, confused.
Sarah was sorting and taking everything valuable. | Source: Pexels
“Her house. I’m here sorting through stuff, and I’m taking most of it now. Maybe I can get something out of it,” Sarah explained.
“You can’t do that!” Edward yelled through the phone.
“Yes, I can. She left no will, and we were her only direct relatives. Also, I’m keeping the house because you already have one. I’m being nice and telling you to come here if you want anything before I sell them,” Sarah finished and hung up.
Gianna drove Edward to his grandmother’s house, but when he got there, Sarah didn’t let him take anything. “No, I called dibs on that already,” she said when he grabbed a random vase. It didn’t matter. Owning these things would not soothe the pain of losing their grandmother.
Edward took interest in his grandmother’s old blanket instead. | Source: Pexels
“How about this?” Edward asked, grabbing an old blanket with a beautiful pattern. He remembered when he and his neighborhood friends would use it to build a fort with his grandmother’s dining room chairs.
“Oh, that old thing? Sure,” Sarah said dismissively. Edward took it and told his wife it was time to leave. He didn’t want to spend one more minute in that house, watching his sister callously sort through their grandmother’s things for her personal gain.
“I can’t believe Sarah’s attitude,” Gianna said on the car ride home.
“I know. She was never the warmest person, but this is just…disgusting. If our parents were here, they would be so disappointed,” Edward added. But they let the subject go and continued with their lives. He finally landed a job that allowed him to work from home.
Their Native American friend, Chenoa, thought the blanket could be special. | Source: Unsplash
Everything was looking up for their family after all these years of worry. Gianna also decided to hang the blanket in their room because the intricate woven pattern was beautiful. “I’m going to save up some money, and we can frame it,” she said.
He loved his wife because she could appreciate the little things like that. One day, her friend, Chenoa, visited them, and Gianna showed her the blanket. “OMG, that actually looks Navajo!” her friend said.
“You think so? I think Edward’s grandmother had it for ages. She might not have known,” Gianna added. But Chenoa was Native American. She would definitely know.
“That’s definitely a Navajo blanket, and it looks old but well-preserved. Can I take a picture? There’s a man on the reservation who can identify Navajo anywhere. I’ll text him,” Chenoa explained.
They auctioned it off for a huge amount. | Source: Unsplash
A few minutes later, the man replied and confirmed that the blanket was, in fact, authentic and appeared to be antique. Edward and Gianna invited the man over, and he explained that it could be a blanket from the 1800s.
“This is serious. You two might have stumbled upon a precious antique,” the Navajo expert told them.
So they took the blanket to an antiquarian who confirmed this too. “This could be worth between $200,000 and $500,000…maybe more,” he explained.
Upon learning this, Edward and Gianna decided to place the blanket for auction despite its big sentimental value. The fact is, life is unpredictable, and they needed the money so their kids would be safe. But they didn’t expect how the auction would turn out.
“Sold! For 1.5 million dollars!” the auctioneer yelled. Edward and Gianna looked at each other, dumbfounded. They were now millionaires.
Sarah demanded money and was arrested for trespassing. | Source: Unsplash
Their big win reached the local newspaper which wrote a story about it, and Edward’s entire family, including Sarah, found out. “I demand half that money, Edward! Or I will sue you!” Sarah screamed at him.
“You kept everything for yourself, Sarah. You don’t have a case. This is our money. Goodbye,” Edward said.
Edward was right. Sarah didn’t have a case, so she started harassing them for the money. This urged Edward to have her arrested for trying to break into their home. He also filed a restraining order against Sarah and got her to stop harassing them.
In the end, Edward’s family thrived, thanks to that money. The kids had college funds, and he started his own business.
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